The Overlooked Demographic in the Opioid Crisis
In a recent op-ed, I drew attention to the one demographic that remains absent from the opioid crisis discussion: caregivers. Politicians, pharmaceutical companies, physicians, patients, attorneys, and law enforcement all weighed in on the public health opioid crisis.
Yet one demographic, with significant input into this issue, has received almost no mention in the discourse of chronic pain patients and opioids. That would be the 65 million and growing population of family caregivers.
Serving as a caregiver for my wife for more than 30 years, I’ve handled enough opioids that their street value easily runs into the millions. Washington Examiner 12/12/2017
No one said anything!
With a lengthy history such as mine, you would think that medical professionals would offer a path of education and support for me. Yet, not one physician, physician assistant, or nurse ever took seconds to offer guidance to me. Rather than offering help to me as a caregiver (and subsequently to my wife …their patient!), I never heard, “Hey, she’s got chronic pain issues, and taking a significant amount of medication for an unforeseeable amount of time … you might want to seek some counseling and/or support groups for yourself through this journey!”
A Family Issue
Chronic pain is a family issue. It affects all significant (and a few insignificant) relationships of the person in pain. Treating someone in chronic pain is also a family issue. When opioids are introduced or removed in the treatment of chronic pain, the patient is better served when the family caregiver is healthy. Caregivers must possesses the necessary resources to seek to their own emotional well-being through what will inevitably be a rocky journey.
Check out the recent interview on Open Line
Since then, I’ve shared with numerous media outlets the challenges faced by the family caregiver when dealing with opioids. Furthermore, paid caregivers attending loved ones can also represent a problem with opioids are involved. Many families are spread out and paying for an individual or service to care for an elderly loved one. Consequently, those families employ paid attendants to help with aging loved ones. In the events of falls or surgeries, those loved one are often placed on opioids. Maybe the employee is upstanding and dedicated. While that may be the case, families need structure boundaries regardless.
“You Don’t Respect What You Don’t Inspect.”
While paid attendants are in the home, vigilance in inspecting and auditing opioids (and other items) remains paramount. Setting clear boundaries on the front end help both the family and the employee. When families engaged, fewer opportunities for misunderstandings, mistakes, and even theft occur.
Family caregivers all too often perform significant medical tasks beyond their training, and furthermore, they tend to be isolated. Consequently, the isolation of caregivers tends to wear down the caution when dealing opioids and other medical related issues.
For those caregivers of chronic pain patients using an opioid (s), please seek help. Talk to your physician and ask for a referral to a counselor. Pastors and clergy also can connect to some type of professional counselor. In addition, support groups serve a vital role in pushing back against the isolation. Support groups also help connect us to other individuals struggling with similar issues, but are further down the path than us. If nothing presents itself in your area that is specific to your circumstances, try Al-Anon.
A Path Towards Healthiness
The first step for caregivers towards a healthier lifestyle for caregivers is to recognize the need for outside help. Yet, we caregivers often feel reluctant to do so for a variety of reasons. Since things such as finances to feelings of embarrassment may keep us from enlisting assistance, all too many caregivers go it alone. Consequently, we tend to “white-knuckle” our way through brutal challenges in isolation. Asking for help, however, is not a sign of weakness; it’s wisdom. Furthermore, asking for and learning to accept help is a major step towards becoming a healthy caregiver.
Because … Healthy Caregivers Make Better Caregivers.
Discussing the opioid issue with reporters in TN before heading to Washington for the State of The Union.
More Discussion on Opioid Impact on Caregivers
In addition to the above interviews, click for recent interview about this subject and more on the AGEWYZ Podcast.
About Peter Rosenberger
A thirty-year caregiver for his wife, Gracie, who lives with severe disabilities, Peter Rosenberger understands the journey of a caregiver as few do. His experience led to him to author four books including Hope for the Caregiver, and 7 Caregiver Landmines and How You Can Avoid Them.
Peter recently earned a 2nd Dan (degree) black-belt in Hapkido. Furthermore, Peter is also an accomplished pianist. He recently released his new CD, Songs for the Caregiver.
Peter and Gracie live in Nashville, TN, where he also serves and the president and co-founder of Standing With Hope.